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Rosemary
United Kingdom
2068 Posts |
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yaxu
10 Posts |
 Posted - 02/03/2008 : 23:43:59
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Thanks for posting this Rosemary, but I'm not too keen on this kind of portrayal of autism.
Here is an autistic woman speaking for herself, in her own language:
http://www.youtube.com/watch?v=JnylM1hI2jc |
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Aasa
Canada
771 Posts |
Posted - 02/04/2008 : 01:49:18
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Hi Rosemary:
The intentions of this band may be good, but personally, I would not contribute one cent or penny to Autism Speaks, because for the most part, their agenda re research does not contribute anything worthwhile to getting the basic studies done, which would/could make a difference towards finding out whether vaccines and/or their ingredients are at the root of autism and other neurobiological disorders. Their scientific advisors are against this line of reasoning. While I am glad to see that Autism Speaks is making some effort to get insurance coverage for some autism interventions, I truly do not think that their current agenda will do anything towards helping to stem the tide of newly diagnosed children. Despite having to deal with the problems my own kids face, I would like to see an end to the ever-growing numbers of children diagnosed with ASD. I don't think Autism Speaks will accomplish that, if they continue to bury their heads in the sand and not fund independent research which would look at the differences between vaccinated and non-vaccinated children.
Aasa |
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Rosemary
United Kingdom
2068 Posts |
Posted - 02/06/2008 : 00:24:50
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Welcome to the forum yaxu.
Hi Aasa,
Shame to hear that autism speaks has their own hidden agenda |
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GUS THE FUSS
United Kingdom
1465 Posts |
Posted - 02/06/2008 : 07:49:38
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Politely put
By J.B. Handley
Is it just me, or do Autism Speaks and the Wrights all of a sudden seem about three inches
tall after Jenny's appearance on Oprah?
I remember several years ago when I heard that the president of NBC's grandson had
autism. Man, I thought, this could be IT!! I was even more astonished when, about a year
later, this guy's daughter, Katie Wright, emailed one of our Rescue Angels like any other
parent looking for help. OK, I thought, it's really going to happen: the story of these kids
is going to have the chance to be told for every Mom and Dad to hear!
And, I was dead wrong. (Katie, as we all know, did go on to show unbelievable courage,
break down the door at Oprah, and ultimately part ways with Autism Speaks.)
And now, like the Jordache jeans you moms no longer wear, who gives a flip what Autism
Speaks does, says, or sponsors? The reason they drove us all crazy is because it felt like
they were controlling the message. There was Allison Singer in the Wall Street Journal
saying the parents provided bad genes, there was Suzanne Wright on Larry King never
mentioning vaccines or recovery. It was starting to drive us all a little mad.
With Jenny, the proverbial cat is firmly out of the bag. In fact, the cat has taken off and is
visiting your neighbor's lawn! With each sale of an additional book, more parents have the
chance to decide for themselves what is best for their kids. Who cares if 20/20 doesn't
mention vaccines? You can no longer fool everyone.
Just for fun, I did a little recon yesterday, I called Autism Speaks. I asked them if they had
any information on this "GF-CF thing" Ms. McCarthy mentioned on Oprah. After a few
minutes and some other phone numbers, a very kind person came on the line, I won't
mention names (but she was warm, polite, and caring). I asked her about Ms. McCarthy,
the Oprah show, these improving kids, the diet, and that as a parent I wondered what
Autism Speaks position was on all of this? Her response, and I'm quoting:
"We're acknowledging that the work they are doing [referring to DAN! Doctors] is having
extraordinary results, but Autism Speaks is about the science."
As far as learning more about the GF-CF diet, she encouraged me to "Google for more
information" and she also said to take a look at Autism.org where they have "quite a bit of
good information." For those of you who don't know, Autism.org is the home of The
Autism Research Institute, founders of the DAN! movement, aka "The House that Bernie
Built."
What to make of this interaction? On the one hand, the kind person I was put in touch with
was very helpful. Had I been new to the diagnosis, referring me to ARI would have been
the best thing they could have done for me. They did this, and I give them credit for it.
This means parents who are calling there are getting help. Bravo.
But, and there is a huge BUT, the hypocrisy of this interaction leaves me sputtering for
understanding. While a person given authority by Autism Speaks to talk to parents clearly
has the best of intentions, the Autism Speaks that 99% of the world sees does not
acknowledge DAN!, does not acknowledge recovered children, and does not honestly
address the issue of vaccines and the role they may play in the epidemic. And, their
research dollars are doing nothing to explore the "extraordinary results" that DAN!
appears to be offering some of the kids. And, while Katie Wright, Peter Bell, and God
knows who else at Autism Speaks has used a DAN! Doctor, we don't see word one of that
in any of their materials or statements.
It's also interesting to note that at Autism Speaks headquarters in New York City, the
mother ship, there is exactly one employee who is the parent of an autistic child: Alison
Singer. (That's the mom who told Bob & Suzanne it would be a good idea to publicly throw
their own daughter under the bus.)
Autism Speaks has become a shameful, pathetic, political blight on the autism landscape.
One celebrity – Jenny McCarthy -- with the willingness to speak the truth has done more in
three days to help children than Bob and Suzanne Wright and their tens of millions have
done in three years. Until Autism Speaks decides to be truly inclusive and acknowledge
DAN! and the recovered children in a public way, and then back it up with research dollars,
your donations would be put to far better use trying to lobby to get the Yugo back on the
road.
J.B. Handley is co-founder of Generation Rescue.
http://www.rescuepost.com/rescue_post/2007/09/jordache-jeans-.html
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Edited by - GUS THE FUSS on 02/09/2008 19:54:20 |
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Rosemary
United Kingdom
2068 Posts |
Posted - 02/10/2008 : 14:15:06
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HI Gus, Thanks for posting this information about Autism Speaks
Real shame that they don't support DAN or the recovery of children with Autism..... let alone supporting research investigating the connection between vaccines + autism |
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GUS THE FUSS
United Kingdom
1465 Posts |
Posted - 02/10/2008 : 21:37:05
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Hi Rosemary with the millions Autism Speaks have available they spend more on lunches compared to the cost of an investigation into the cause of autism...like most of these charities the money doesn’t go where the big celeb ball fundraisers’ are told it goes.
Sad but true..
Good of you to raise it thanks I didn’t know much about them until a couple of months back
Gus
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NEW AUTISM VIDEO
